Hey,
My counts are still too low to go to Houston for round 2. Houston has asked UVA to do a biopsy so we know where I am, blast-wise. So that's happening on Weds. I had plane tickets twice and canceled them so I'm waiting for a change before I buy them again.
Either way- the garden is lovely and the kids are great.
Still waiting,
Beryl
https://www.youtube.com/watch?v=ICv27M744Bs
Monday, August 26, 2019
Saturday, August 17, 2019
Hold Yer Horses Little Lady!
Hi,
So James suggested I reach out to Houston (before we hop on a plane) and make sure they have my latest counts, just in case there is an issue. So, I did. And...there's an issue. My counts have not recovered enough to get the second treatment, so, we are home for another week. I'm sending MD Anderson my counts now, to make sure they are receiving current info. This would have been awful to schlep out there and be told to go home and come back. So, I'm hoping my blood count and platelets improved. I had a blood transfusion on Thursday and again today. My platelets are low but I haven't need a platelet transfusion. Oy.
Take care,
Beryl
So James suggested I reach out to Houston (before we hop on a plane) and make sure they have my latest counts, just in case there is an issue. So, I did. And...there's an issue. My counts have not recovered enough to get the second treatment, so, we are home for another week. I'm sending MD Anderson my counts now, to make sure they are receiving current info. This would have been awful to schlep out there and be told to go home and come back. So, I'm hoping my blood count and platelets improved. I had a blood transfusion on Thursday and again today. My platelets are low but I haven't need a platelet transfusion. Oy.
Take care,
Beryl
Sunday, August 11, 2019
Moving Forward
Hi,
Things are feeling pretty good. I'm needing platelets regularly and blood every few weeks but that's expected. My counts are not fab- the white counts are still low and I'm still without an immune system BUT, my blasts are gone from regular blood tests and that was the big goal. I've been seeing a lot of the kids and the grandkids which has been a wonderful gift. We are in the throes of the birthday month so- they have to see me!
James continues to be fantastic. You never know who you've married until a shit storm happens. I will say, he's always been a keeper. My friends Silvia and Joe stayed over for a visit and it was great. I've always heard it's important to have social contact when you are ill but I get the real importance of it. When good friends are around, you rise to the occasion. Then, you're there. You've risen. That helps keep you up. So
that's what I've learned.
This morning I ordered bulbs for planting this Fall. James will do most of the work and I will reap the benefit! Our goal is to plant the bulbs now (Fall) and in the Spring, after the transplant and recovery, sit on the front porch with the grandkids and marvel at their beauty. Good goal. While Silvia was here, I asked her to photograph the fam. She is S. Florida's most beloved photographer, as you know. Isn't Rowan a spiffy dresser??
xoB
Things are feeling pretty good. I'm needing platelets regularly and blood every few weeks but that's expected. My counts are not fab- the white counts are still low and I'm still without an immune system BUT, my blasts are gone from regular blood tests and that was the big goal. I've been seeing a lot of the kids and the grandkids which has been a wonderful gift. We are in the throes of the birthday month so- they have to see me!
James continues to be fantastic. You never know who you've married until a shit storm happens. I will say, he's always been a keeper. My friends Silvia and Joe stayed over for a visit and it was great. I've always heard it's important to have social contact when you are ill but I get the real importance of it. When good friends are around, you rise to the occasion. Then, you're there. You've risen. That helps keep you up. So
that's what I've learned.
This morning I ordered bulbs for planting this Fall. James will do most of the work and I will reap the benefit! Our goal is to plant the bulbs now (Fall) and in the Spring, after the transplant and recovery, sit on the front porch with the grandkids and marvel at their beauty. Good goal. While Silvia was here, I asked her to photograph the fam. She is S. Florida's most beloved photographer, as you know. Isn't Rowan a spiffy dresser??
xoB
Saturday, August 3, 2019
Home!!
Hi,
We are home!!! We had a great dinner with the "kids" at Katie and Lyle's. It was great. I'm moving very slow taking it easy. It's only way I CAN take it! It's so good to be home! We go back to Houston on August 18th and leave again on the 22nd. I'll have 2 more doses of atomic chemo and come home to recover. Then, 4-6 weeks...transplant!
I'm going to slowly fold clothes.
xoB
We are home!!! We had a great dinner with the "kids" at Katie and Lyle's. It was great. I'm moving very slow taking it easy. It's only way I CAN take it! It's so good to be home! We go back to Houston on August 18th and leave again on the 22nd. I'll have 2 more doses of atomic chemo and come home to recover. Then, 4-6 weeks...transplant!
I'm going to slowly fold clothes.
xoB
Subscribe to:
Posts (Atom)