Saturday, October 7, 2017

bloody mcblood blood

hi,
things went fine with chemo last week- my hemoglobin tanked the following week. I'm 2 bags low this time. I'm at uva now getting transfused. My doc thinks its chemo side affects and that I should be patient. So I am.
on the drip,
b

Monday, September 25, 2017

New Round started today

Hi,
I started my third round of chemo today- proceeded by another pint of delicious blood. The doc says I am producing new young red blood cells so I'm moving in the right direction. My platelets are good and I just need to remain calm and proceed. So that's the plan.
Oy
Our renovation is almost 100% done- we are sleeping upstairs and using one of the new bathrooms. It is beautiful. No lie.
The doc took extra blood to test my boy vs girl white blood cells.  It takes a week to get the results. 3 months ago it was almost 50/50. The goal is to get me back to all boy (donor), thus my regret over that awesome skirt. Once I'm all boy again, Ima need more girly clothes!
B

Thursday, September 14, 2017

Needed more blood ...... so I got it

Hi,
I was feeling out of breathe last weekend so I went to the docs and established I was about a pint low. I spent the day getting refueled. I'm at about 75%. This relapse has def slowed me down.
Not loving this but I am carrying on. I just grouted the last tile work I did on the bathroom renovation and it is pretty sweet. I'm still bummed about not buying that skirt.
Taking care,
B

Monday, August 28, 2017

Moving along nicely

Hi,
I had a blood transfusion last week and man was that great! I felt like an angry young man, but not angry or a man. Maybe just young. I started my next round today and the doc says my hemoglobin is still "goodish", my platelets have increased to normalish and my marrow is producing lots of new young red blood cells which indicated the chemo is doing it's job. He doesn't expect I'll need anymore transfusions which is great news. I feel good. I'm going to work in the garden. So there!
Take care,
Beryl

PS. I'm adding a photo from several years ago when I went thrift store shopping with my girls, Silvia and Angi. Believe it or not, I did NOT buy this tutu. WTF was I thinking??? I'd wear it to Chemo if I had it!

Tuesday, August 22, 2017

Hi- sorry for the lapse

Hi,
I'm sorry for the lapse. Life...am I right?
So the first cycle went well. So far no side affects. I am doing 5 days instead of 7, which is much easier. My hemoglobin was low and I had to have a transfusion. I haven't had one since my transplant. The low hemoglobin makes going up stairs and hills a challenge. Other than that I'm living my regular life. I'm at UVA right now waiting to see if I need more blood. My doc is being very attentive to this which I appreciate.
I'm trying to stop caffeine after 2:00 so I can tell when I am tired and actually rest. There's an innovative idea, right? In the meantime our home renovation is in full swing and we have been living with all of that excitement. There does seem to be an end in sight. (please baby Jesus!).
Thank you for your positive thoughts and energy. Sometimes I feel daunted but I've been able to do EMDR and come back.
School has started and I'm back in the saddle. I'm VERY lucky to be where I am.
Take care,
Beryl
PS My Grandson just turned 3!!!!

Thursday, July 20, 2017

okay- here we go....

Hi,
I spoke with the doc at about 6:30- he says all of my blood counts are down (they have been declining all along) and that my platelets are now below normal for the first time. He wants me to start Vidaza (chemo) sooner than later. He says it takes a while for it to kick in and he doesn't want me need a transfusion or be more prone to infection etc. So I start on Monday July 31st. Five days on and three weeks off. I'm not thrilled but I don't want to go into serious decline. I know this drug and it's a good one so I'm proceeding. Please think of me as the kick ass healthy monkey that I am.
In health,
Beryl

Wednesday, July 12, 2017

PS

Hi,
I'll see my UVA Doc next Thursday and we'll discuss the start date and other stuff. So in the meantime...
B