Tuesday, February 5, 2019

New Year New Baby New Plan

Hi,
   So the docs are figuring out the best protocol. We go to VCU tomorrow to speak with our old doc, then the docs all talk and come up with a plan. They all agree that a transplant now would be a mistake. That was James' fear. The prospective new drugs have been pre-approved (soooooo expensive- 2 grand a pill!!) Thank you PVCC and your excellent insurance coverage. It can take some time to approve so my UVA docs got started. So I've gotten over being freaked out, mostly.  I also had the flu and am on the upswing. Also Lyle and Katie have brought their daughter into the world- young Rowan Yates. She sounds smart and rich- right? She's delish. Thomas says her name is Clickclack. He also believes it's his sister. He's also delish. 
   I've needed two platelet infusions and one unit of blood. I'll get checked thurs again. It's the chemo from last month. It's more intense than the Vidaza. 
    So I am in anticipation of the next thing. I'll keep you updated and as Thomas says (for unknown reasons)..bye! Thanks for watching! Seriously- thank you for the positive energy, love and support. 
Off the ledge,
Beryl

I'd include a pic but I need a haircut and I'm bragging because I still have hair! I told my transplant doc I was going to get it buzzed and she suggested I wait. She said the transplant chemo might not make me bald. I told Thomas he could cut my hair (a trade for letting me cut his). So far he has forgotten and I'm glad I listened to my doc.

3 comments:

  1. Clickclack--love it! My cousins wanted to name their little sister "Convertible Suzanna." Congrats on grandchild no. 2!

    Sounds like things are moving, although the path sounds new. Love you! Glad the flu is on its way out!

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  2. so happy you have a new grandbaby! love you b xoxo

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  3. Love Clickclack!!! Go Thomas...and you have Super Docs in your pac!!!! XOXOXOXOXOOXXOOXOXOXO

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