Hi,
We just spoke with Dr. Daver, the MDAnderson doc. Here's the plan: there is a great trial that is moving into phase three soon. We go to Texas on Tues. Sept 17th, I get admitted the next day, Weds, and start treatment. I will be taking 3 drugs. The first is Vidaza ( a drug I have taken before but is revitalized by the other drugs) 7 days on, 3 weeks off. This is a treatment I can continue in Charlottesville. Then two new immunotherapy drugs that I will begin along with the Vidaza and then take every 2 weeks. I'll be inpatient for 2 weeks but not isolation. Then I'll stay in Texas for 2 more weeks and continue with the immun. drugs every 14 days. Then home. So a month in Texas.
Then I will go back to Texas every 2 weeks for 2 days - day for treatment and one for travel and receive the immunotherapies in Texas. This will continue for 3 months or so until I am in remission and can proceed to transplant. I'll also be monitored at UVA, when I am home. I was concerned about my low counts and he said these therapies actually do better with the lower counts and tend to bring them up. The success rate is 35-40%, which is pretty good. He is optimistic and so are James and I. This is the weirdest life, isn't it?
Take care,
Beryl
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