Tuesday, October 1, 2019

Moving in the right direction

Hey,
It's day 13. Tomorrow I have the second dose of the immunotherapy and if all goes well I leave the hospital the following day. I'll come in 3x a week if all is well and be home. The day I leave I will have the third dose of immunotherapy and start the vidaza cycle. I'll have to leave for cville that same day to get home for day 2 of the chemo cycle. It's a juggling act. So in a month day 1 is both treatments and day 14 is just the immunotherapy. Lord.
Anyway I have been feeling good. James and I walked  down 16 floors of stairs. Not UP- down. I'm going to try walking up a flight tomorrow. Maybe more- we'll see. James and I have also been pruning roses outside of the hospital. That whole "yellow rose of Texas" is a thing. They do also have pink, orange and red BUT they are not being deadheaded! So since I'll be back every two weeks I think I can work off part of my bill.
I speak to Thomas Ian and Bridget on facetime and Katie and Lyle send us those awesome "Live" phots of Rowan. I've been doing a lot of schoolwork and Christmas shopping. I am so looking forward to sleeping through the night, although I will say- the nurses are very helpful and don't come in from 10pm-5am when they take blood and vitals. Then they don't come back until 9am. I can actually Fall back asleep most mornings. The nurses are pretty fantastic.
Take care,
Beryl

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