Friday, January 3, 2020

what a world!

Hi,
So we got back from Texas on New Years Eve. Happy New Year to you all!
Dr. Daver (Texas doc) and Dr. Ballen (cville doc) have agreed that because this is my 2nd transplant and because the immunotherapy medicine makes me a larger risk, I should have the transplant at MD Anderson. They have done many many transplants on people in my situation and UVA hasn't done any. So, the plan is the first 100 days in Texas. 30 days in the hospital (and if all goes well) 70 days in an apt nearby. James will be with me. After that I will come home and UVA will get me through the second part of the recovery. Both docs feel that is the safest route to success. We have moved the administrative stuff over to MD Anderson. The head of the transplant unit there is global and apparently "wrote the book". Dr. Daver said he is the one you want to get you through. So Houston. It's taking me some time to process this. I think it's the smartest move and the has the best potential for a good outcome.
In the meantime, I go back to Texas on Jan 12th and will have another biopsy to see where I am in the process. I may be doing the trial for several more months- no one knows. There is definitely a good plan in place. I am being very lazy and resting a lot. I have a cold (effing Uber driver) and I'm taking it easy.
James and I took Thomas to our annual trip to the Lewis Ginter Light show. It was wonderful. He is such a fun, sweet boy. We had Christmas at our house and I got lots of time with Thomas and Rowan. It was wonderful. Here's a pic of Thomas at the light show.
Happy New Year. Here's hoping this is the year I kick ass.
Beryl

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