Tuesday, July 7, 2015

All went well

So it took all day- a lot of waiting but it was okay. They are starting me with a "primer" dose just about an ounce of donor cells, to make sure nothing crazy happens and prepare my body for the next infusion. The protocol is 2 rounds of chemo, a dose of donor cells and then a bone marrow biopsy to see how it's all going. The doc said the average time is one year if all goes well. I have my biopsy on Aug 10th and the results come in 2-3 weeks later. I need to be on guard for graft vs host as the new blood cells are introduced. The doc said people typically get some kind of G v H but not all and there is a range from mild to severe. I didn't have any the last time and of course that's my goal here.

I was getting very anxious while waiting for the blood and James did some EMDR with me. He's amazing.

I feel good today- I plan to do a little house work and then work out at the gym. It feels like a normal day.
I start my next round of chemo on July 22 and it goes through the 28th.

Please keep me in your prayers and thoughts (in a good way!)
Take care,

PS the doc told me 5 years ago they made the patients go through a complete transplant again. They had a 5% survival rate. So scary. They changed the protocol and that's what I'm doing now.


  1. You are doing it Beryl and I am there for you!!! xoxo

  2. I think James needs to do EMDR for the 60 folks who follow your blog — I think we are all as anxious as you are.

  3. OMG. Beryl, I have been out of it. Thinking of you, my friend. Sending Tigger <3.