Wednesday, June 28, 2017

The Big Trip to Houston

We got home last night and here are the highlights:
 I like the doc. He's young and very brainy. He ordered a biopsy to see whats up with the blasts and also their chromosomal make up. If my blasts are normal (blasts are abnormal cells that should self-destruct but don't- that causes Leukemia) we just chill and keep a regular watch. If they are increasing or have the MDS clone,  he wants me in a promising immunotherapy trial. It's a mix of 2 drugs that are meant for situations similar to mine . No chemo. The plan is 1 month in Houston to make sure I respond well and am close to the hospital in case I have a bad reaction, and then 1 day every two weeks for the treatment. Then once a month. Not sure for how long it will last. I think I can do that. One month in Houston beats another transplant. He thinks the treatment will at least hold things at bay and at most provide a cure. He's optimistic. I'll continue to work and figure out a way to be away from school for a month.  So we'll know on July 10th what's up. He'll call with the result of the test. In the meantime I'm glazing tiles for my new bathroom and plan to play with Thomas soon. I was very freaked out lSunday night and couldn't sleep.  James did a lot of EMDR with me and I was able to settle down. After the biopsy we ate a great Thai meal and had a huge freekin piece of chocolate cake with decaf lattes. We couldn't finish the cake (4 layers) but we really really tried. I worked out today and feel very optimistic. I'll post after I hear the results of my biopsy. In the meantime- a picture of cake!!! It doesn't really give you a sense of the scale. That's a dinner size plate!!!!


  1. You, my Bud, are my light!! And you know I am shining it uber brightly on YOU! And I wish I had been there to have that cake with you and James!! I am soooo grateful for your keeping me (us/all) informed and the positiveness of the Texas Trial you Bud..and remember "Fringe" lots of it! Humm, maybe it is not so stylin these days?XXOOOX

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