Sunday, April 21, 2019

Nothing is clear and all is a mystery

Happy Easter!
We had the family over for lunch and it was great. After everyone left James and I took a nap. A perfect day!
So the tests results are unclear. My boy/girl ratio is almost 50/50 (half of my old cells half of my donor cells) which is a little better. My blast counts are a tiny bit better. My doctor (Dr. Douvas) says looking at my overall blood counts, the test results and my boy/girl counts, he thinks I am slowly making progress. He is sending the biopsy samples to MD Anderson in Texas to run the tests again. The two tests that analyze the blasts (bad blood cells) are still very far apart. One suggests 4.5% blasts which is close to remission and the other 14.5% which is close to Leukemia. There is no way I can go into transplant with those numbers. This past month I needed a blood transfusion one time. Last month it was 2 blood and two platelets. I am receiving a little less chemo now so that is probably why. I still go to the clinic 2x a week to have my blood checked to see if I need transfusions. Next week my doc will have a plan but it looks like chemo, biopsy, rinse and repeat. He heard from a doc at John Hopkins who has a patient using the same chemo regiment and she told him it is very slow. We had heard from the doc at MD Anderson that the treatment had very fast results (which was what I was going with.) I'm thinking it's the slow boat to health. The worst case would have been increased blasts and that didn't happen.
So, I am still teaching on-line and doing the best I can. I am generally low energy but I still do stuff, just rest in between. I see the Grandkids regularly and am gardening. I garden a little and rest a little. I must say though, my garden is looking amazing. I'm planting flowers with the hope that I will get the transplant and come home and recover while seeing the flowers go crazy.
One day at a time with no idea of anything.
I keep saying to myself, "this time next year I'll be completely healed".
Take care and happy Spring,
Beryl

3 comments:

  1. I am close to getting my tropical/subtropical plants out of their winter quarters in the cellar.
    Granny Marsha now has a growing family in the birdhouse we set up in the front yard. We anxiously await the little heads poking out of the entrance. We are also waiting for a bunch of flower seeds to sprout and brighten up the back yard.
    Our future awaits.
    Bob and Marsha

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