Hi,
We just got back in to Houston. We are whooped. It is 2:47 am Virginia time and I head into clinic at 7:15. The plan is the immunotherapy infusion and then back to the airport and home Tuesday night. Oy.
I spoke with Dr. Douvas on the phone today and he said Dr. Ballen, the transplant doc will call me probably next week to start setting up appts in preparation for the transplant.
Progress..no?
Happy Thanksgiving!
Beryl
Monday, November 25, 2019
Friday, November 15, 2019
2% down!
Hi,
I just got the first report back from the biopsy. My blasts (blasts are bad) are down another 2% so my blast count is now 7%. It's not good enough for transplant yet but def moving in the right direction. My Houston doc, Dr. Daver, is very happy with my blood and platelet counts. They are suppressed by the traditional chemo but they came back up afterwards which means my marrow is working.
The Texas trip was wild. I was in the hospital on weds from 8am to 11:30ishpm. LLLOOONNNGGG day. The next day was short (we started at 7am) and we had time to try out TRUTH barbeque before we went to the airport. It was not as good as Killens. I think Ima give barbeque a little rest.
Take care,
Beryl
I just got the first report back from the biopsy. My blasts (blasts are bad) are down another 2% so my blast count is now 7%. It's not good enough for transplant yet but def moving in the right direction. My Houston doc, Dr. Daver, is very happy with my blood and platelet counts. They are suppressed by the traditional chemo but they came back up afterwards which means my marrow is working.
The Texas trip was wild. I was in the hospital on weds from 8am to 11:30ishpm. LLLOOONNNGGG day. The next day was short (we started at 7am) and we had time to try out TRUTH barbeque before we went to the airport. It was not as good as Killens. I think Ima give barbeque a little rest.
Take care,
Beryl
Tuesday, November 12, 2019
Back Again
Hi,
Two weeks have passed (almost) and we are back for 2 days of fun. I have a Bone Marrow Biopsy scheduled tomorrow afternoon (weds) and we'll know something a few days from then. I am beginning my next round of treatments, as well. I've been doing ok- recovering from the last cycle and actually did well. I haven't needed any platelets or blood which means my marrow has recovered and is producing stuff. I'm feeling a little low energy now (it's 1:14 am so there is that) and have generally been moving a little slower. BUT I'm still moving. We had some nice weather last sunday and James and I planted over 200 more bulbs. We still have more to do but we have to wait for a warmish day (above 50 degrees).
I'll let you know something when I know something. In the meantime I'm wearing my good luck undies. (I ONLY wear them for biopsies) My Cville doc has a good luck shirt he wears for my biopsies too. Another reason I love him.
Take care,
Beryl
PS If we get out early enough tomorrow- we are trying "Truth" barbeque. Here's hoping.
Two weeks have passed (almost) and we are back for 2 days of fun. I have a Bone Marrow Biopsy scheduled tomorrow afternoon (weds) and we'll know something a few days from then. I am beginning my next round of treatments, as well. I've been doing ok- recovering from the last cycle and actually did well. I haven't needed any platelets or blood which means my marrow has recovered and is producing stuff. I'm feeling a little low energy now (it's 1:14 am so there is that) and have generally been moving a little slower. BUT I'm still moving. We had some nice weather last sunday and James and I planted over 200 more bulbs. We still have more to do but we have to wait for a warmish day (above 50 degrees).
I'll let you know something when I know something. In the meantime I'm wearing my good luck undies. (I ONLY wear them for biopsies) My Cville doc has a good luck shirt he wears for my biopsies too. Another reason I love him.
Take care,
Beryl
PS If we get out early enough tomorrow- we are trying "Truth" barbeque. Here's hoping.
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