Monday, December 14, 2020

BIG PIVOT!

 Hi,

So my liver enzymes are above the limit for the trial I am on and the docs have found a new mutation. So I am off this trial because the drug that killed my blasts doesn't like my liver, BUT because of the new mutation I am eligible for an even better trial with an 80% rate of success and then transplant. I have to "wash out" of the old drugs, which should help my liver enzymes. All my liver functions are good, actually normal, so the doc thinks it's because of the trial drug. So big pivot for me. As soon as I am "washed out" I'll go back in the hospital for a week and start the new regime. They are being extra careful because of the holidays and reduced staff in the outpatient clinic. So the doc is excited. He says this is a great trial with great outcomes and is suited for someone with my medical experience. 

I'm getting a liver scan for fun in an an hour so. They are being super careful with lots of protocols in place.

I'm taking a breathe. Trusting the universe and very happy to be here.

Take care,

Beryl


5 comments:

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    ReplyDelete
  2. Beryl - this is very good news! We love you and MISS you!

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  3. Being on this roller coaster with you is exciting - but I'll be happy on the carousel too. I see your comment section got hacked - hope none of your homies falls for the anti-scammer scammer. Whattaworld

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  4. © All Right Reserved -- had to use it myself - it looks so official

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  5. Awesome. Okay honey bunch. I am with you even though I am not physically there. Mmmwwahhh. XXOOXX

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