Tuesday, March 3, 2020

Day 2..so far so good

Hi,
I had my second dose of the new immunotherapy today. Yesterday I was very tired after the dose and had to have a lay down. Today I went to the gym at the hotel and walked and used light weights for 30 minutes, ten had lunch and then rested a little. The plan is something like 21 days of the immunotherapy (4 pills) vidaza on the 8th-15th day (traditional chemo) then a week off. I'll be able to take the pills and the chemo inVa. next month. I'll probably have to come here once a month for the biopsy. My clinical trial nurse is............. disorganized. That's why I wasted my first week here. I see my doc on the 9th and I will share my concerns. In the meantime, James and I are checking and double checking everything she says.
We are enjoying the Spring here. We ate Bar-b-que at Killens a few days ago and are doing simple meals in the kitchenette. James is even making us green smoothies. I'm doing my school work and working on taxes. We face time with the grandkids as much as we can. That's a lovely treat.
Here's a pic of the dafs at my house- just starting to bloom.
Take care,
Beryl

PS. We went to the botanical garden here- they are f-ing clueless about garden design. I am not kidding. They are in the throes of Spring and it was dismal. We also went to the butterfly garden which was great. 

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