Thursday, December 10, 2020

Everything is everything

 Hi,

So we are set to move into our new, MUCH nicer apt on dec 24th. It has real linens and cooking stuff lovely outdoor sitting areas. It aint cheap but it will be worth it. ALso- not on a busy street and NOT on the all night train line!!!

I has my second hospital stay and all went wellish. My liver enzymes are up (an expected side effect of the treatment) and they are adjusting my meds accordingly.  I was suppose to go in today for my 3rd treatment but that's pushed back to sat or mon- after my enzymes come back down. Lots of smart folks here. I met with the transplant doc today to make sure I have my ducks lined up. My donor from last year is still well and willing. They are a perfect match. My insurance has said yes- it will cover the cost which is huge. Last year the cost was 102,000,000. without insurance. It made me cry then to think about people with no insurance. It's insane. 

After this next short hospital stay I am all outpatient for the next cycle. I have a biopsy on the week of dec 28th and my doc says no matter how great the numbers are, (and they have to be perfect) I'll do a second round. If all looks good- transplant central. I'll be here a while no matter what happens.

I am doing ok- no terrible side effects, busy with work and making art. I facetime with the fam often. James is seeing clients. My sons and daughters-in law are taking well care of mail etc. It is an ok life. Very hospital centered, of course, but I'm here for the big guns. I use my "wait time" well. I'm getting my spring classes ready- lots of work there but I enjoy it.

I walked all the way back from the hospital today 1.3 miles. I felt fine. Texas is FLAT! 

I'm going to enclose a screen shot of Rowan, dressed as an adorable elf and a fam portrait of the Moriarty Solla's with their piece for LTBL. Thomas was DJ Phantasmagloria and designed the piece. Bridget supported him and made it real. Pretty great!

Stay well, The sitch is almost in the rearview!

Beryl




2 comments:

  1. Sounds like your digs are so much nicer! You are amazing with all you are dealing with and what you are doing. The poppies look so lovely. The one picture is so colorful. And Rowan is adorable. Love Betsy

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