Hi,
We spoke with the Doc after a day of tests.
I start the two drugs in a sequence for the first 5 days. Then that's it for taking the drugs. Then the drugs start doing their work and I am moved to an isolation unit because essentially I will have no immune system. They will keep me there for 20plus days until my counts come back up. If all goes well I will come home and possibly go into transplant if I am in remission. If I don't go into remission, I will come back to Texas for a month or so and get a second dose OR if the transplant isn't ready to go, I'll come back to Texas and have a smaller dose to keep me in remission. After the first 5 days (or so) I won't be able to have any visitors (even James). They say the biggest risk is infection and since they initiated this stricter protocol their infection rate has dropped 30% so I'm happy to comply. It's interesting that they are stricter here than VCU was with visitors when I had my transplant there.
The appts went very smoothly- they know what they are doing.
So, that's the plan. I didn't expect them to be so strict about visitors but I definitely don't want infection. James and I can speak through a glass (like prison!) and I'm guessing we'll skype a lot. The Doc said I will lose weight and maybe/probably my hair. They said I should be fine for teaching on-line etc. I'm glad I'll have work to do. That and on-line shopping for my skinny new self.
I'll keep you posted.
Thanks for your energy and love.
Take care,
Beryl
imagine -- planning for a month in the bubble. wow. do they sterilize your accoutrement or just worry about other humans? Hope you'll put me on your Duo or FB Chat list. I know it's scary for you, so I try not to let on that it's scary for me too. Love you sister.
ReplyDeleteIt is scary but I have James with me and he does his EMDR magic. I don't know if I would be able to do this without him. He'll be either with me (behind the glass) or close by. Do you facetime? I have the duo app I think but I haven't used it. I'm still teaching on-line which is a blessing. It takes up time and I forget where I am when I'm working. We are staying at the hotel attached to the hospital. They make things very convenient. Anyway, everyone here is either starting, midway through or completed their recovery. James and I talk to everyone. Home of the Brave. xo
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